Autism is a complex developmental disability that typically
appears during the first three years of life. The result of a neurological disorder that
affects the functioning of the brain, autism and its associated behaviors have been
estimated to occur in as many as 1 in 500 individuals (Centers for Disease Control and
Prevention 1997). Autism is four times more prevalent in boys than girls and knows no
racial, ethnic, or social boundaries. Family income, lifestyle, and educational levels do
not affect the chance of autism's occurrence.
Autism impacts the normal development of the brain in the areas of social interaction and
communication skills. Children and adults with autism typically have difficulties in
verbal and non-verbal communication, social interactions, and leisure or play activities.
The disorder makes it hard for them to communicate with others and relate to the outside
world. In some cases, aggressive and/or
self-injurious behavior may be present. Persons with autism may exhibit repeated body
movements (hand flapping, rocking), unusual responses to people or attachments to
objects and resistance to changes in routines. Individuals may also experience
sensitivities in the five senses of sight, hearing, touch, smell, and taste.
Over one half million people in the U.S. today have autism or some form of pervasive
developmental disorder. Its prevalence rate makes autism one of the most common
developmental disabilities. Yet most of the public, including many professionals in the
medical, educational, and vocational fields, are still unaware of how autism affects
people and how they can effectively work with individuals with autism.
Children within the pervasive developmental disorder spectrum often appear relatively
normal in their development until the age of 24-30 months, when parents may notice delays
in language, play or social interaction. Any of the following delays, by themselves, would
not result in a diagnosis of a pervasive developmental disorder. Autism is a combination
of several developmental challenges.
Communication
Sensory Impairment
Social
Cognitive
Play
Behaviors/Self-help
What Causes Autism?
Researchers from all over the world are devoting considerable time and energy into finding
the answer to this critical question. Medical researchers are exploring different
explanations for the various forms of autism. Although a single specific cause of autism
is not known, current research links autism to biological or neurological differences in
the brain. In many families there appears to be a pattern of autism or related
disabilities which suggests there is a genetic basis to the disorderalthough
at this time no gene has been directly linked to autism. The genetic basis is believed by
researchers to be highly complex, probably involving several genes in combination.
Several outdated theories about the cause of autism have been proven to be false. Autism
is not a mental illness. Children with autism are not unruly kids who choose not to
behave. Autism is not caused by bad parenting. Furthermore, no known psychological factors
in the development of the child have been shown to cause autism.
How Is
Autism Diagnosed?
There are no medical
tests for diagnosing autism. An accurate diagnosis must be based on observation of the
individual's communication, behavior, and developmental levels. However, because many of
the behaviors associated with autism are shared by other disorders, various medical tests
may be ordered to rule out or identify other possible causes of the symptoms being
exhibited.
Since the characteristics of
the disorder vary so much, ideally a child should be evaluated by a multidisciplinary team
which may include a neurologist, psychologist, developmental pediatrician, speech/language
therapist, learning consultant, or another professional knowledgeable about autism.
Diagnosis is difficult for a practitioner with limited training or exposure to autism.
Sometimes, autism has been misdiagnosed by well-meaning professionals. Difficulties in the
recognition and acknowledgment of autism often lead to a lack of services to meet the
complex needs of individuals with autism.
A brief observation in a
single setting cannot present a true picture of an individual's abilities and behaviors.
Parental (and other caregivers') input and developmental history are very important
components of making an accurate diagnosis. At first glance, some persons with autism may
appear to have mental retardation, a behavior disorder, problems with hearing, or even odd
and eccentric behavior. To complicate matters further, these conditions can co-occur with
autism. However, it is important to distinguish autism from other conditions, since an
accurate diagnosis and early identification can provide the basis for building an
appropriate and effective educational and treatment program. Sometimes professionals who
are not knowledgeable about the needs and opportunities for early intervention in autism
do not offer an autism diagnosis even if it is appropriate. This hesitation may be due to
a misguided wish to spare the family. Unfortunately, this too can lead to failure to
obtain appropriate services for the child.
*Autism Society of America
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